Child Bear net
Steering Committee: Anne Chang, Ahmad Kantar, Keith Grimwood, Jeanette Boyd, Zena Powell, Andy Bush, Adam Hill, Stephanie Yerkovich, Angela Zacharasiewicz
Start: 2021
Projektinformation/Beschreibung/Zielsetzung:
Child bear net is an international collaboration with a goal to improve the care and clinical outcomes of children with bronchiectasis, formed under the auspices of the European Respiratory Society in 2021. Children’s BEAR Network is developing a collaborative bronchiectasis registry to document the incidence and prevalence of bronchiectasis, and to map the natural history of the disease. High quality data will help to answer key questions that will ultimately lead to better treatment and quality of life for those with bronchiectasis.